For the next few Sundays I am going to be looking back at the 10+ years of RJsCorner to resurrect some of my favorite posts from the past. I mean those posts where I swell up when I read them again. The first of those favorites is what this post is all about.Read more
I know the title above is rather ambitious for a single blog post, but I do want to give you an idea of how it came about and how some of the statistics might be deceiving. I have been studying this topic for a few weeks now and thought I knew enough to put out a continuous series of posts on the subject, but as my snippet on This N’ That Sunday mentioned I just didn’t know how much I didn’t know. So, I am going to put out bits and pieces of what I have been learning as I go along. After all, a blog is not supposed to be novel length but instead snippet of info.
To the layman, it seems that “Autism” just came on the scene in the late 1980s. Before that is was almost unknown by the general public. In reality, the term itself was coined in 1908 to describe a subset of schizophrenic patients who were especially withdrawn and self-absorbed.
Hans Asperger brought it to the forefront in the field of psychiatry in 1944 when he describes a “milder” form of autism now known as Asperger’s Syndrome. The cases he reported were all boys who were highly intelligent but had trouble with social interactions and sometimes specific obsessive interests.
After World War II there was a lot of psychoanalytic work done on autism where researchers looked solely at the negative impact on life experiences. At that time Autism was not considered biological or genetic. In 1980 “Infantile autism” is listed in the Diagnostic and Statistical Manual of Mental Disorders (DSM) for the first time; the condition is also officially separated from childhood schizophrenia.
It was not until 1988 when the movie Rain Man is released which stars Dustin Hoffman as an autistic savant that Autism became widely known to the general public. At that time Asperger’s Syndrome was not included in the DSM category.
Finally, in 2013, The DSM-5 folds all subcategories of the condition into one umbrella diagnosis of autism spectrum disorder (ASD). Asperger’s Syndrome is no longer considered a separate condition. I have some strong feelings about that but I will leave them to another post. ASD is defined by two categories: 1) Impaired social communication and/or interaction. 2) Restricted and/or repetitive behaviors.
Some say folding Asperger’s into the DSM category was a mistake since it is significantly different when it comes to life experiences from much of the rest of the autism spectrum. More on that in a near future post.
Footnote: The source for much of this history is from the Parents.com website.
I saw an article in the New York Times recently about how a new orthopedic clinic contacted Amazon to find out who bought knee-braces in their area. After paying a fee Amazon sent that info along with names and addresses of the customers. The new clinic then sent mail to just that select group instead of flooding the area with their advertisements. I guess some would consider that an invasion of privacy but I kind of see it as smart advertising and saving a forest of trees.
What do you think? Is Amazon abusing their customers?
I’m a car guy, or at least I enjoy watching TV shows about cars. One of my favorite new shows is “Full Custom Garage”. It is about a very creative guy who doesn’t have all the fancy tools of so many other shows but manages to make beautify creations with very basic tools. The satellite channel he is on used to be called “Velocity” but just recently it was re-named “Motor Trend”.
I think the owner of the channel got a new CEO recently and he had to justify his million dollar contract by renaming the channel. The trouble with this is that on my satellite listing it is tagged MTHD. Is it just me but when I see those initials I think “Meth Head”? I will keep watching it but I will never describe myself as a meth head! 🙂
In_Depth Report Coming Soon…
For the last couple of weeks, I have been working on an In-Depth report on the subject of Autism. I was hoping it would be ready for tomorrow but it just needs more work so I will put it off at least another week. The title is The Positive Side of Autism. It is about my study of autism concentrating primarily on adults and in particular Asperger’s part of the spectrum. I suspect the title is upsetting to some, especially those who have children with the most severe forms of autism, but there is a positive side for this condition that needs to be explained. The vast majority of work in autism is with children. Since what is now defined as autism has been around for centuries or more we need to know about it at the adult level. That is where perhaps, 98% of the total autism population exists.
I will be putting out my 3500th post here at RJsCorner this week! If you don’t believe me, just click on the Archive Calendar on the right side of this and every post. 🙂 I didn’t know I had it in me. This is my 10th year on the corner, but it seems like yesterday!!
Help me celebrate and I hope you keep coming back for more.
When I got a recent comment from one of my regular viewers I realized it was time for another post about Autism. This one is about senior citizens who are autistic but are generally undiagnosed. A recognized statistics is that there are over a million of us that are autistic in the Baby Boomer generation alone.
Even if those million were suddenly officially diagnosed to be autistic it is very doubtful that any but a small percentage of them would even accept that fact. It is kind of like another area that I am familiar with and that is hearing impairment. Only about one in five seniors who have hearing difficulties seek help. They just insist that all of a sudden everyone started mumbling.
In that same vein, too many in our boomer generation see autism in any form as being a disgraceful thing that is to be locked in the closet, and for the most severe cases that was the general rule for our generation. Sadly, that is a totally misconceived notion that I want to try to put a small dent in with this meager post.
Autism is not a dreaded disease but instead is really just a way that a significant portion of the population see and react to the world. Their perceptions in some ways make them unique and special.
I admit that I am just beginning to learn the intricacies of the autism spectrum so I have a lot to learn. For that reason, I can’t really address the spectrum idea with any degree of knowledge. But, what I have studied is a condition called Asperger Syndrome so I will concentrate on that anomaly for the purposes of this post.
Here is what the Autism Speaks organization says about Aspergers:
Asperger syndrome was generally considered to be on the “high functioning” end of the spectrum. Affected children and adults have difficulty with social interactions and exhibit a restricted range of interests and/or repetitive behaviors. Motor development may be delayed, leading to clumsiness or uncoordinated motor movements. Compared with those affected by other forms of ASD, however, those with Asperger syndrome do not have significant delays or difficulties in language or cognitive development. Some even demonstrate precocious vocabulary – often in a highly specialized field of interest.
The following behaviors are often associated with Asperger syndrome. However, they are seldom all present in any one individual and vary widely in degree:
• limited or inappropriate social interactions
• “robotic” or repetitive speech
• challenges with nonverbal communication (gestures, facial expression, etc.) coupled with average to above average verbal skills
• tendency to discuss self rather than others
• inability to understand social/emotional issues or nonliteral phrases
• lack of eye contact or reciprocal conversation
• obsession with specific, often unusual, topics
• one-sided conversations
• awkward movements and/or mannerisms
Many in the Baby Boomer generation readily admit that they have always had several of the traits of Aspergers. The causes of those characteristics were labeled as just being: shy, timid, introvert. Many say that they have problems with making eye contact or trouble with conversations/small talk that others seem to readily accomplish.
Some, who are much more knowledgeable than I have put together a list of possible undiagnosed Aspies in the celebrity world today.
- James Taylor – Age 70
- Dan Aykroyd – Age 65
- Vladimir Putin – age 65
- Susan Boyle – age 57
- Isaac Asimov – died at age 72
- Daryl Hannah – age 55
- Bill Gates – age 62
- Abraham Lincoln – died at age 56
- Robin Williams – died at age 63
- Bob Dylan – age 76
A good portion of this list is Baby Boomers. I would be proud to be included in this influential list with them. They, because of their Aspie traits are very creative people who speak their minds. Aspergers is not something to be ashamed of but instead just describes some fundamental characteristics of our personalities that make us different from others. If you want to see more details on why these people are either confirmed or likely Aspies click here.
Before I close this topic, I want to delve a little more into the general topic of autism.
From Autism Speaks — Autism, or autism spectrum disorder, refers to a range of conditions characterized by challenges with social skills, repetitive behaviors, speech and nonverbal communication, as well as by unique strengths and differences. We now know that there is not one autism but many types, caused by different combinations of genetic and environmental influences.
The term “spectrum” reflects the wide variation in challenges and strengths possessed by each person with autism.
In the end, what does in matter if seniors deny the possibility that they are Aspies? In most cases, there is likely no harm. But it is also known that these traits become more significant as we age and lose some of our inhibitions so maybe this information in the hands of our caregivers would be valuable.
Being a person with some strong Aspie traits, I just don’t handle stressful situations well. Fortunately, I don’t totally lose it as the word meltdown infers but I quit acting like an adult and instead am a panicked kid. In autism studies, these episodes are called meltdowns so I will call them that for the purposes of this post.
One of my most prominent stressors is criticism. I am plainly oversensitive. I often perceive my wife’s criticism as calling me a complete idiot. When those situations occur I frequently go into at least some level of meltdown. I start shouting back about how she doesn’t think I can flush a toilet without screwing it up! Usually, when the episode is over I can evaluate what happened with a more adult view but that doesn’t ameliorate the damage done to both of us by these episodes.
From the studies I have read I know that over time, these types of situations alienate friends and peers. They have also caused marriage problems and even divorce.
My meltdowns for sensory episodes are less frequent as I just don’t allow myself to get caught up in them. Instead, I either avoid the causes or quickly flee the situation. I don’t like crowds and especially people standing behind me. For that reason, I often shop in the off-hours. My photography helps with crowds. I tell myself I am there to document the event and therefore manage to control my uneasiness more easily.
I know the severity of my personal meltdowns is much less than others on the spectrum. I am grateful for that and sympathetic to others who are worse than I.
It has been a while since I put out a post about Autism concentrating primarily on Aspbergers’ Syndrome. This post will be about sensory sensitivity. Of course, that means being sensitive to sight, touch, taste, sound, and smell and is often a symptom of Autism.
I continue to discover new traits in my life that point me to Aspbergers. This one came from a billboard that I saw several times a month while traveling back and forth from my small town to a larger one with more services and medical options.
Let’s go through the list with my stories:
Sight – I am a late riser in the winter months and an early riser the rest of the year. The reason for that is two-fold. One is that I have too much to do around this 3-acre homestead to spend extra cool hours in the morning in bed. 😉 The other one, more relative to this post, is that I can’t sleep in a room filled with any significant amount of light. My eyelids just don’t filter out much light it seems. I am very sensitive to bright and flashing lights. Even TV flashes cause me to wake up from a nap.
Touch – Creases in my bed sheets are a cause of my frequent sleep interruptions. I am an Apple watch guy now, and it tells me I am an extremely restless sleeper. Another touch sensitivity is that after about six months of use, I have to replace my bath towels as they just get too scratchy. I could add a few more to the list but I think you get the idea.
Taste & Smell – These are two biggies for me. There are things that just make me wacky in the taste and smell area. I just can’t understand how anyone can put mouthwashes like Listerine in their mouth. The taste and smell are utterly intolerable to me. But something that is even worse is the smell of mint in any form! Whenever I get even a whiff of mint I pretty quickly abandon the area.
It seems that all the oral hygiene manufacturers think that adding mint to their products is a bare necessity! For that reason, I have to special order many toiletry items so they are mint free. If I had a choice between sitting next to a cigarette or even a cigar smoker, or a gum chewer, I would without a doubt chose the smoker. Mint just drives me up a wall.
Sound is usually included in sensory sensitivity but since I am totally deaf I am at least free from that one. 🙂
I recognize that for many on the Autism spectrum these types of things cause a panic meltdown. I am thankful that for me my reaction is not quite as severe.
I have previously discovered that I have some characteristics that are identified with Asperger’s Syndrome which is part of the Autism spectrum. As a result, I have been more deeply studying the topic. I don’t call myself an Aspie as I have not been formally diagnosed with that condition but, I am certain I have common traits with it.
I have recently discovered that there is a LOT of variation in what people say is the definition of autism. Here is a little more about that:
Perhaps we could detach Asperger’s from autism and say that Aspies are different from other autists the way zoologists say that cheetahs are different from leopards. Let us stipulate the obvious: they are different species.
But in my analogy, naming them as different species does not erase the fact that they belong to a broader category called “big cats” or “predatory felines,” and giving Asperger’s a separate name does not erase the fact that there are large areas of overlap with what I call “deeper autism.”
The above was (I repeat) only an analogy. The point intended is to say: we can change our labels and create a more exclusive definition for autism. But the fact remains: the spectrum is broad because it is describing a fundamental reality.
Autism (broadly defined) is much more common than we thought.
To me, the classifying of autism is in a funk right now. No one knows just how to classify it. There is now a term labeled “Broader Autism Phenotype” (BAP) that describes people who are “sort of ” autistic but still highly functioning. I think that kinda describes me.
I know there are probably some people who have children with severe forms of autism that resent someone who is, for the most part, a fully functioning member of society using the label. I can relate to that because when I hear that someone is “deaf” I immediately question if they can hear but not fully understand the spoken word. Many with that condition are labeled as “deaf.” when they are really just hearing impaired. There is a world of difference between the two and so I kinda, but really not too much, resent them saying they are deaf.
Another example might be that someone proclaims they are a cancer survivor when all that entailed was to have a mole removed. To someone who is struggling with lung cancer that is demeaning of their condition.
I don’t know how this will all eventually work out. We can change our labels but as it presently stands autism is a very broad spectrum because it describes a fundamental reality that there are many of us who struggle with life’s social situations.
I will continue to proclaim that I have some Aspie type characteristics but will not call myself an Aspie. I hope I don’t offend those who struggle with this condition much more than I do.